Tag Archives: disability

our pit completed… in-ground trampoline

How in the world can you make a trampoline accessible?

Thanks to one of Meredith Sinclair’s (Hoo-dee-Hoo) tweets, I found the perfect solution in an in-ground trampoline. Didn’t take much convincing of Otis Carter (Carter Albarran Landscape Group), our amazing landscaper, to give it a try. Now, our guy with cerebral palsy can walk right out onto it & bounce to his little heart’s content.

We might be the only people here in the arctic, snowy climate of Chicago to have attempted a pit trampoline- we’ll see how it fares after a blizzard or two. For right now, it’s just a lot of fun.

vintage-twisted

Whooo-hooo!


come to Holland with me!

I came across this essay years & years ago, when Kyle was a baby, and it helped me express our experiences to our families. It still speaks for me- with hope and truth, optimism and reality.

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.


Can you call a pit gorgeous?

The kids have been dying for a trampoline and I have serious reservations- the biggest is how is the 10 yr old with cerebral palsy going to get on?!? And off? And around the netting? Without, of course, breaking my back by lifting him up. We thought about building a staircase, perhaps with a platform, but it seems that might cause more problems than solutions.

Can a trampoline be any more unsafe than the way the kids are dangling, hanging, jumping, and twisting off the second story of the soon-to-be replaced play structure? As soon as I say, “You can NOT do that!” they come up with a new crazy, daredevil antic to perform.

And what floats across time & space and lands right here, on my computer, through a friend’s tweet? This! Known as a sunken, pit, or in ground trampoline.

vintage-twistedThanks to Babble, an amazing blog, with a lot of information for all, for posting these . Check out this post to see other backyard beauties…
vintagetwisted

After some initial research, it seems that a drainage system is a must, along with some type of retaining wall. Do you have any input? Suggestions? Concerns? Send me a comment & some help!


Will you finish strong?

Really, what will you dare to complain about today?

Nick Vujicic


Biking for all!

We found an AMAZING bike shop last spring, The Bike Rack, in St. Charles, Illinois. In addition to selling traditional bikes, Hal Honeyman will fit and offer advice to help kids with special needs find a bike that works for them. Hal began adapting bikes for his own son, Jacob, and now adapts traditional bikes with such specialty items such as extra wide tires and belted seats, and also offers adaptive bikes and tandems.

Look at the red beauty Kyle got at The Bike Rack!

To find out more about The Bike Rack, Creative Mobility & Hal Honeyman, check out this YouTube video:


Hoo-dee-Hoo!

I was a guest blogger today on Meredith Sinclair’s VERY popular blog/vlog, Hoo-dee-Hoo. Check out the short piece I wrote on my attempts to help children find ways to connect with a special needs child, especially mine.

You can find Meredith, the effervescent, funny, calm-in-the-storm we’d all like to be, by clicking on the link below.

VintageTwisted