Tag Archives: life

willing & able: the new volunteers

F.I.I.V.E., Fostering Intergenerational Inclusive Volunteer Engagement, is a new program matching seniors and special needs people up for volunteer opportunities. Here’s a video clip that highlights the program:

Interested in learning more? Check out this article from the Chicago Tribune.

You can also contact Center for Independent Futures, an amazing organization dedicated to helping adults with disabilities and their families plan, support and sustain new ways of living in their community.


welcome, Zoe

We’ve been busy over here this fall- see the lack of posts?

Let me introduce you to our newest little trouble-maker:

Chicagoland Dog Rescue

We first saw Zoe on Petfinder.com, a website that helps you find rescue pets in your area, based on your specifications. Lucky for us, the Schaumberg PetCo was hosting adoptees from Chicagoland Dog Rescue, and Zoe was one of them. We headed on over & there she was.

After lots of paperwork, Zoe came for a home visit. WE wanted to make a good impression, especially with Zoe’s foster mom & director of her case. There was another family also interested in her, so Zoe got to choose- which family would she like best? She picked us!

Originally a stray, Zoe came to us with intestinal parasites, a urinary tract infection and soon developed pneumonia, which she battled for 2 weeks.

Now she is healthy, 40 pounds, somewhere around 6 months and we think she’s at least part plott hound.

What’s your guess?

Here’s her success story posted on the CDR website.


and now for a little comedy relief…

Okay, I have a secret. I admit, I have been watching Toddlers & Tiaras, late-night, with the blinds drawn & giggling all by myself. That show is so wrong and yet here I am, awed by the antics of Makenzie and Eden and soooo happy I have never actually been to a little toddler beauty pageant.

Here’s one dad’s take on the itty bitty beauty pageant world…

In case you don’t know Mackenzie, here’s a quick clip of that big personality in a teeny body:

And here’s a look at FUTURE Mackenzie.

Go ahead & laugh. I won’t tell.


Murmuration… from Sophie Windsor Clive

So beautiful…

Murmuration from Sophie Windsor Clive on Vimeo.

Want to learn more? Check out the article “The Mathematics of Murmurating Starlings” by Daniel Butler.


our pit completed… in-ground trampoline

How in the world can you make a trampoline accessible?

Thanks to one of Meredith Sinclair’s (Hoo-dee-Hoo) tweets, I found the perfect solution in an in-ground trampoline. Didn’t take much convincing of Otis Carter (Carter Albarran Landscape Group), our amazing landscaper, to give it a try. Now, our guy with cerebral palsy can walk right out onto it & bounce to his little heart’s content.

We might be the only people here in the arctic, snowy climate of Chicago to have attempted a pit trampoline- we’ll see how it fares after a blizzard or two. For right now, it’s just a lot of fun.

vintage-twisted

Whooo-hooo!


come to Holland with me!

I came across this essay years & years ago, when Kyle was a baby, and it helped me express our experiences to our families. It still speaks for me- with hope and truth, optimism and reality.

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.


Insert Hammock Here

I LOVE summer!

No homework, sunshine all the time & kids, kids, kids. Yes, I love having those energetic, fighting, wiggling, whining, yelling, laughing, screaming, naughty children home with me. I make them go on adventures with me, and make them stay home & clean with me and we all drive each other crazy. And what a guilt-free way to avoid all that stuff I hate- bills, working out, cleaning, errands, fighting with the insurance company, and mostly the have-tos of life. I can’t possibly get to that now. The kids are home!

Is it summer yet?
vintage-twisted   Vintage Twisted   VintageTwisted

Chicago 4/18/2011